Hello, Ben here, in a guest appearance on Kaz’s new blawg.
I recently tweeted about Liam having to go in to hospital for an MRI, and a few friends commented that they didn’t know what was going on, so I thought I’d fill you all in on the backstory.
If you don’t know already, Liam was a little impatient to join us back in June of 2008, and arrived six and half weeks early (if you can’t see the photo or story at that link, just friend us on Flickr and all will be good). Since then, he’s been monitored closely by his pediatrician, who takes all of his measurements on each visit. On our first visit with the pediatrician he shared three concerns with us: 1) Liam had ankyloglossia (commonly referred to as tongue-tie); 2) he had an inguinal hernia; and 3) his head was larger than normal. I won’t got into details on the possible complications arising from the tongue-tie, or the hernia, but suffice to say, we had the hernia operated on at ten weeks, and the tongue-tie clipped at ten months. As for the unusually large head, well that’s another story.
During that appointment, I convinced the pediatrician that Liam’s large head was nothing to worry about. I let him know about the history of large heads in our family. I cited the fact that neither me nor my siblings could find hats to fit, and that my mother, her sisters, and many of my cousins, nieces and nephews all had large heads. Not convinced, he measured my head, noted down a figure, and agreed with me. Fascinated to have quantitative evidence of my super-sized-noggin, I asked him how big my head was. 63cm, he replied. Well, is that big? Given that the circumference of the average adult male head is 55cm, and 61cm is considered “unusually large”, then yes, he said, you have a big head. I quipped that it’s where I kept my unusually large brain, but the humour was lost on him and we left without further discussion.
We hadn’t put much more thought into Liam’s head circumference until a recent visit with the pediatrician. The most recent measurement saw the size of this head leap above the 97th percentile. Given that his weight and height are both below the 5th percentile, he’s quite out of proportion (I should add that he doesn’t look so to us, as far as we’re concerned he’s of perfect proportions). The pediatrician voiced his concern over Liam’s head size with us again, and suggested we take him for a brain ultrasound, just to be sure. We went for the ultrasound, not thinking much of it—ever the optimists—and it revealed that Liam had an excess of fluid in the ventricles in his brain, a conditions referred to as hyrdocephalus. Typically, your brain produces about 500ml of this fluid a day. It bathes the brain in it’s mineral-rich sugary goodness, and then drains away into the blood stream. Apparently, the upper acceptable limit of fluid is 33% of the total volume of the brain, and Liam’s is about 40%.
*sigh* And here we were thinking that our days of hospital visits would be over until he got to the bone-breaking age.
Given the results, our pediatrician suggested a further scan to find out the cause of the fluid build up. It can be caused by one of three things. An excess of fluid production, a blockage in the plumbing that drains the fluid away, or a failure of the brain to absorb the fluid back into the blood stream. Apparently it’s most likely to be a blockage, but to be a sure, an MRI is required. So today, we visited the hospital with Liam for the MRI.
MRIs aren’t really a big deal for adults, we lie still in a big shiny tube while the machine bangs, clicks, and whirs around us taking images. Sometimes for up to an hour. See the problem? Keep still? For an hour? Ever tried asking a one year old to lie completely still for an hour? Yeah… not gonna happen is it. The solution to this problem is a general anesthetic. So, this morning at 6:30am we checked in to the hospital and waited while everything was prepped. He was anesthetised at around 9am (sheesh!! ask me about that experience some time), and the scan took a little over an hour. Another couple of hours waiting around at the hospital for Liam to prove he’d overcome the effects of the anesthetic, and we were able to bring him home.
Now we wait. A couple of days for our pediatrician to get the results, and a few weeks before we can see a rocket scientist neurosurgeon to find out what course of action is required. If the pediatrician decides it can’t wait a few weeks, we should be able to see the neurosurgeon sooner. And the worst case scenario is that Liam requires a shunt, to artificially route around any blockage, and drain the excess fluid somewhere into his body that it can be dealt with appropriately. Just one more step on our journey of caring for this amazing human being.